Saturday, June 6, 2009

My first Blog~

Well, I have decided to make this blog up instead of leaving the other children out. They all want their time in the spotlight, and this way, while telling you all of our journey with Kyler and HLHS, I can tell you of my children's journey as well!
Kristina is my 13 year old daughter. She was born to me as a single mother, only being 18 years old. She was my sidekick, every together, always together. Her nickname was goldilocks because she had beautiful blonde, CURLY, hair. She was always a bright child, learning to speak at a young age, potty trained herself before she was 2 and has continued to excel. She will be going into 8th grade this next school year.

Kameron is my 10 year old son. He was born about 10 months after I married Kristina's father. He was such a ham growing up and always seemed to be Kristina's partner in crime. I have pictures of Kris putting stickers on the walls and Kam just watching her, almost as if to say - WE ARE GOING TO GET IN TROUBLE SIS! =) He is going into 5th grade this next school year and I think he will follow in my love for math. Kameron is ADHD/ODD but has a heart of gold. He also suffers from severe asthma and takes medication daily to help control it. He loves to help his baby brother and loves to make him laugh.

Kaide (pronounced kade) is my 7 year old son. He was born a little over 6 years after his older sister. He was always one to find a way into the things he was not supposed to be in. Like the cat's litter box.....EEEW! He loves to disappear when playing outside and hates being grounded because he forgets to tell me where he is going. =) Kaide has anxiety and hates being left alone for any amount of time, but we are working on it. He is a great helper and earned many awards for helping others this last school year. He will be going into 2nd grade. Kaide struggles to read, but has made EXCELLENT progress and we will continue to work on this area with him. This summer will be a great one to spend time at the library and in the park on a blanket, reading.

Kyler is my youngest son. He was born July 19th, 2007 and diagnosed shortly after birth with Hypoplastic Left Heart Syndrome. During the course of his first hospital stay (birth to Oct 3rd, 2007) he endured 3 open heart surgeries, 2 strokes, 2 stomach surgeries (one to perfom the Nissen and place a G-tube for feeds and another to stitch back up his incision that came open 2 days after surgery for the g-tube and nissen). Kyler was hospitalized several times between his 3rd and 4th open heart surgeries. Most for viruses that went into his lungs and caused difficulty breathing. He had his 4th open heart surgery in April of 2008 and just recently had a sedated echo. The echo showed good function and his doctor was happy with the readings. This is great news for us!

Well, that is it for tonight. If you would like to read everything from the beginning of our journey with Kyler up until now you can visit his care page at carepages.com with his page name being kylerlynn. All one word, no spaces.

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